Thank you is insufficient

My husband and I sat by Deane’s bed yesterday afternoon and read the many, many amazing messages that we have received conveying warm thoughts and prayers for Deane.

We can’t begin to express how much this means to us. Knowing that there are so many people, some of whom are friends of friends we have never met, that are pulling for Deane is incredibly humbling.

He is a brave boy who is going through this with so much patience and strength. His attitude gets us up in the morning and the support we have received from all you keeps us going through the tough parts of the day.

Although we have responded to an embarrassingly few, we are deeply grateful for all the emails, facebook messages, texts and phone calls. The delivery of food, the insistance that we rest and the hospital visits have truly sustained us. We can’t begin to thank enough those who have gone out of their way to help our daughter be a part of this experience but also continue to have the fun a nine year old should be having.

We have always described our life as a journey. As with any journey, this one is so much richer for being shared with so many friends – both old and new. Although it barely begins to  express our gratitude, we wanted to say thank you so very much for taking this journey with us.



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