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What he’s trying to say – Part 2: the VOCA

I can’t begin to count the hundreds of hours I’ve spent programming devices to give Deane a voice. Add to that the number of hours I have sat in meetings setting goals of what he should be able to do with those devices and I’m sure there are weeks that I’ll never get back. In … Continue reading

What he’s trying to say – Part 1

Communication. I am a journalist. I communicate for a living. My husband is in marketing, which  – no matter what you think about it –  is all about communicating a message. The sermon at our wedding was about communication. We live and breathe communication. When Deane was a baby, the focus was on his mobility. … Continue reading

Finding a circle of friends

I always sit up and pay attention when disability issues appear in mainstream media. That was the case when I saw a personal essay in The Globe and Mail written by the mother of Ges, a Grade 4 boy with an unnamed disability. The story was entitled “What I’ve learned about the compassion of children.” … Continue reading

What we wish we had said

Reading Twitter last night when I was supposed to be checking my daughter’s hockey schedule, I fell upon a tweet from Bloom, the blog from Holland Bloorview Kids Rehab Hospital. Bloom’s blogger, Louise Kinross is the inspiration for Disabled Families. The way she writes about her son Ben is moving and compassionate. Her heartfelt honesty … Continue reading

Just like other families …

My family participated in the Terry Fox Run yesterday. This in itself is not remarkable. At least some of us have participated in it for more than a decade. What was remarkable was the mood in which we participated. We have always done the “run” from the same location – an old house in an … Continue reading

The value of suing the doctor

Flipping channels the other night, we came across the documentary Hot Coffee. The premise of the movie is that the U.S. justice system has been distorted by big business reaction to the well-known case of the 83-year-old woman who sued McDonald’s after received third degree burns a spilled coffee. The documentary sites four stories as … Continue reading

Diagnosis day

In her blog about special needs children for Today’s Parent, Anchel Krishna describes receiving her daughter’s cerebral palsy diagnosis in a very straight forward, calm manner: And that’s when the fog came in, and all I could think about was not crying in front of the doctor…. Then she proceeded to tell us that she … Continue reading

Other forms of respite

I read another one of those “Remember to take care of yourself” articles yesterday. The author, who was busy applying for extra-curriculars for her kids, stopped to ask why she didn’t put as much time into organizing something for herself. She acknowledged that putting themselves at the bottom of priority list is a trap many … Continue reading

First day of high school (update)

It went well. I was highly relieved to get a thumbs up when I jumped on to the bus when it pulled up and asked him how his day was. All that preparation and stress and it turns out Deane wasn’t actually supposed to be at school on the 4th. I guess that was schedule … Continue reading

How was your summer?

I’ve been asked this innocent question many times in the last couple of days. My standard answer has been that it was good. Why wouldn’t it have been good? I was lucky enough to spend most of it at the cottage with the kids, getting lots of time with my extended family, eating way too … Continue reading