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I have to admit I was feeling pretty positive. This was one appointment I wasn’t worried about. Yesterday was our follow up visit to the feeding clinic. Five months ago, they were the ones who had put Deane on the track to his g-tube. Although I had been very hesitant, I think Deane adapted first … Continue reading
As she stood at the podium in front of a packed audience, she confessed she wasn’t sure she could do this. But once she started, Stella D’Silva was fine. After all, it was a story she knew in intimate detail. It was about her child. It was a success story. With her son Alex at her … Continue reading
“…if you fuel a child’s innate spark,it will always point the way to far greater heights than you could ever have imagined.” This line is part of the conclusion of The Spark: A Mother’s Story of Nurturing Genius written by Kristine Barnett about her autistic son, Jake. The book, which … Continue reading
OK, so they were right. The doctors, dietitians, OTs and speech paths who said Deane would be better off with a g-tube were right. The persistent cough that woke him – and us – frequently during the night has mostly disappeared. The amount of suctioning he needs is a fraction of what it was. He … Continue reading
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