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How was your summer?

I’ve been asked this innocent question many times in the last couple of days. My standard answer has been that it was good. Why wouldn’t it have been good? I was lucky enough to spend most of it at the cottage with the kids, getting lots of time with my extended family, eating way too … Continue reading

First day of high school

So Deane began high school this morning. He has been pretty excited since we took a tour of the school in the spring. He was happy that he knew one of the kids in the class, liked the pool and the gym where a class was playing basketball. Recently his excitement has been mixed with … Continue reading

What keeps you going

Deane has watched the same Rush concert video after breakfast almost every day this summer. The whole family knows which are his favourite songs and the few he won’t watch. Our nine-year-old daughter can sing almost all the lyrics to the heavy metal tunes. Like many developmentally delayed kids, Deane has certain things he likes … Continue reading

Blame game

People, especially children, will ask why can’ t Deane walk, why doesn’t he speak. Usually I say it is because his muscles aren’t as strong as other people’s. But that’s not really what they want to know. The real “Why?” is why did it happen? What went wrong? One of the hardest things for most … Continue reading

Just do what you have to do

I don’t consider us a disabled family. Don’t get me wrong, my son has cerebral palsy spastic quadriplegia and is developmentally delayed so, technically, we are a family with a disability. Certainly that’s how the many people view us. I’m not going to say that “disabled” is a mindset. There are many things my son … Continue reading