archives

dietitian

This tag is associated with 9 posts

Growing up by appointment

“You are doing really well.” The words hung in the room. I wasn’t sure how to respond. It was a rather unexpected comment as the doctor was getting up to leave. It was the end of a three hour clinic visit – my son’s last clinic visit at the pediatric rehab hospital where he’s been … Continue reading

Message received

The dietitian’s accent is strong enough that I don’t catch every word and my voice is so low that he has to ask me to repeat myself. But the message was loud and clear: Deane had lost weight since coming out of the hospital and the dietitian is referring us to the g tube clinic. … Continue reading

Five days and counting…

Deane is being discharged on Friday – 80 days after his hip surgery. It has been quite a journey:  the oxygen masks, the suction tubes, the abduction wedge, the knee immobilizers, the physio, the NG tubes, the minced food, the pressure sore, the in-house school and the recreation; Christmas, New Year’s and my birthday; the … Continue reading

It’s all about winning the war

We had a number of victories today. Deane had the best night’s sleep he has had in more than three weeks. Don’t know if it was yesterday’s first real physio workout or adding melatonin to his drug regimen, but it worked. If we can repeat it tonight, it will officially be a streak. In yesterday’s … Continue reading

Food vs. nutrition

“Thanks,” I said and I meant it, but it didn’t sound that way. I was trying to be appreciative of people doing their job with the best of intentions. But the tone of my voice was frustrated, angry, even sarcastic. The problem was I didn’t like what they were saying. In their opinion my son had shown … Continue reading

The stockings are …

My son got transferred to a rehabilitation hospital today – two weeks less a day after his hip surgery. I wrote in my last post that this would be a great Christmas present. After another rough night, the nurse came in at 6:30 and said she was going ot take out Deane’s IV because the … Continue reading

A familiar scene

It finally came. The day I’ve been trying to avoid for months. The appointment with the dietitian. At our last appointment, more than a year ago, I had been told that if Deane didn’t gain close to 10 pounds, it would be time to look at a g tube. I’ve written before about our – … Continue reading

The confusing world of charting weight gain

Deane’s weight is so far below the curve on a standard growth chart that it is unmeasurable. No wonder the dietitian is giving me ultimatums. It is very distressing when the doctor points to a spot inches below the sweeping curve of normal weight for 14 year olds. But what I’ve found out on our … Continue reading

The weight crisis in my house

The dietitian is on my case. He’s unhappy about how much my son weighs. In a country where childhood obesity is at epidemic levels, Deane is underweight. He is 14 but will soon be surpassed by his nine-year-old sister in both height and weight. Some of this might be genetic – I’m not exactly a giant … Continue reading