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disability

This tag is associated with 97 posts

“You’re an adult now …”

I couldn’t remember the address. Deane and I stopped so I could check my phone for where we were going. As I looked up, I noticed we had stopped beside three very large, very tough looking guys who were standing in front of a male strip club. I decided to walk and dial. We walked … Continue reading

Dreaming of a dog

Deane loves dogs. He reaches over the edge of his wheelchair tray to pet any dog that walks by. He calls out to sit on the floor to try to snuggle up beside them. Years ago he became inconsolably upset after reading a Curious George book in which the monkey gets a dog. He wanted … Continue reading

Stranded on a desert island

“If you could do anything tomorrow, what would you do?” “Skiing,” said the mechanical voice of my son’s voice output program. “If you won the lottery, what would you buy?” Deane pressed “dog.” “If you were stranded on a desert island, what would you take?” “A guitar and drum. A TV (to watch Raptors’ games). … Continue reading

Riding alone

It is very strange to be sitting here at 3:30. For 14 ½ years, 3:30 has been time to drop what I was doing and meet the school bus. Since my son was in preschool, he has taken a school-sanctioned bus twice a day and my day has been regulated by that bus. The arrival … Continue reading

Time for recognition

OK, so it was a bit long and repetitive. It was the same pattern over and over again. There were many people to thank and pictures to take. But none of us regretted the morning we spent in the school basement. When you’re the parent of a disabled child there aren’t many occasions to celebrate … Continue reading

Happy 16th Birthday Deane!

You’ve changed my world in so many great ways. Love you Dude.

Wanted: personal camp counselor

I don’t know where the last two months have gone. It seemed winter would never end and now we are hurdling toward summer. The school year has been a blur of over scheduled days and weekends that are barely a blip in the frantic pace. My kids, of course, are counting down the days to … Continue reading

A different kind of independence

It happened by chance. I’d love to say it was a thoroughly researched, well-planned and perfectly executed piece of parenting, but it was none of those things. As I have written many times, we have been struggling to help (or push) Deane to become more independent (Pushing recreation, Why am I doing this?). He began … Continue reading

Where people know your name

Sometimes you want to go  Where everybody knows your name, and they’re always glad you came. For people of a certain age, these lyrics immediately conjure up the TV show Cheers and an overweight man walking into the bar to be greeted by the staff shouting his name. Reminiscing about eighties TV shows is not my … Continue reading

World Down Syndrome Day

What is life like for a child with Down syndrome? It isn’t like the depressing stereotypes. This moving video is the response to a mother who is expecting a child with Down syndrome and is scared about what the future holds. Watch it and let go of your assumptions about Down syndrome.