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disability

This tag is associated with 100 posts

From cookies to camp …

A non sequitur? Bear with me. It’s not a secret that making friends is a challenge for most people with disabilities.  This is especially true for those with communication issues. Whether it is discrimination, stigma, a lack of understanding or just a simple awkwardness, many people don’t see the disabled as people with whom they … Continue reading

Please help us sleep

Every parent knows how debilitating it is when you have a newborn who wakes you up multiple times every night. You find yourself begging the baby to give you just a bit more sleep. As the weeks wear on, you stumble around numb and incoherent. Now imagine doing that for more than 20 years. Our … Continue reading

From a sibling’s perspective

Deane is my brother. He is physically and developmentally disabled and he is about to lose most of the support services that help him live a healthy, engaged life. Why? Because he will soon age out of the school system. That’s right. When Deane and thousands of disabled young people like him reach the age … Continue reading

“You’re an adult now …”

I couldn’t remember the address. Deane and I stopped so I could check my phone for where we were going. As I looked up, I noticed we had stopped beside three very large, very tough looking guys who were standing in front of a male strip club. I decided to walk and dial. We walked … Continue reading

Dreaming of a dog

Deane loves dogs. He reaches over the edge of his wheelchair tray to pet any dog that walks by. He calls out to sit on the floor to try to snuggle up beside them. Years ago he became inconsolably upset after reading a Curious George book in which the monkey gets a dog. He wanted … Continue reading

Stranded on a desert island

“If you could do anything tomorrow, what would you do?” “Skiing,” said the mechanical voice of my son’s voice output program. “If you won the lottery, what would you buy?” Deane pressed “dog.” “If you were stranded on a desert island, what would you take?” “A guitar and drum. A TV (to watch Raptors’ games). … Continue reading

Riding alone

It is very strange to be sitting here at 3:30. For 14 ½ years, 3:30 has been time to drop what I was doing and meet the school bus. Since my son was in preschool, he has taken a school-sanctioned bus twice a day and my day has been regulated by that bus. The arrival … Continue reading

Time for recognition

OK, so it was a bit long and repetitive. It was the same pattern over and over again. There were many people to thank and pictures to take. But none of us regretted the morning we spent in the school basement. When you’re the parent of a disabled child there aren’t many occasions to celebrate … Continue reading

Happy 16th Birthday Deane!

You’ve changed my world in so many great ways. Love you Dude.

Wanted: personal camp counselor

I don’t know where the last two months have gone. It seemed winter would never end and now we are hurdling toward summer. The school year has been a blur of over scheduled days and weekends that are barely a blip in the frantic pace. My kids, of course, are counting down the days to … Continue reading