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We would go full of optimism and pride at how well Deane was doing, ready to list his accomplishments since our last visit. I left every time and dissolved into sobbing tears. Deane was born two months premature and for the first year of his life was followed by the preemie clinic at the hospital. … Continue reading
The dietitian is on my case. He’s unhappy about how much my son weighs. In a country where childhood obesity is at epidemic levels, Deane is underweight. He is 14 but will soon be surpassed by his nine-year-old sister in both height and weight. Some of this might be genetic – I’m not exactly a giant … Continue reading
“You can’t be strong every day.” This from a trainer who had been putting a group of 40-something women through their paces for 90 minutes. Why is my instinct to disagree? Why do I think it’s impractical to contemplate not being strong if you have kids – especially a special needs child? Kids are demanding … Continue reading
I wish I had had a camera. From my seat, the upright pipe organ was framed by my mother’s profile on the left and Deane’s on the right. Both their faces shone with that kind of eye-sparkle, inner-warmth glow. It is one of Deane’s rituals after the service to half walk, half dance across the … Continue reading
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