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school

This tag is associated with 7 posts

The clock is ticking

  I get it. It’s pretty easy to spend my time at the family cottage – seemingly endless days in the sunshine, great meals with friends and family, hours in the boat enjoying the fresh air. Deane and I are both at our happy place. Nothing to complain about. Amid all that pleasure, it’s the … Continue reading

Time for recognition

OK, so it was a bit long and repetitive. It was the same pattern over and over again. There were many people to thank and pictures to take. But none of us regretted the morning we spent in the school basement. When you’re the parent of a disabled child there aren’t many occasions to celebrate … Continue reading

Awful parenting 101

So I legitimately had a doctor’s appointment when the school called to say my son was “exhibiting a high temperature.”  But I didn’t have to get off a station early and make three stops on my way home to get the car.  Or take the time to delete 97 emails from my phone and make … Continue reading

Ask – don’t tell

We’re celebrating an anniversary.  It’s been exactly two months since Deane’s surgery. Two months that have taken us from operation to ICU to constant care to rehabilitation. We’ve been through oxygen saturation difficulties to a collapsed lung to hydration and swallowing concerns. There have been five NG tubes shoved up his nose, days of unappetizing … Continue reading

The white flag

“Nice way to wake up,” I snarled at the nurses. From my hard, fold-out chair beside my son’s hospital bed, I saw three nurses and heard Deane crying as they peeled his eyelids back to put eye drops his still sleeping eyes. I fell back in my bed and really felt like I might not … Continue reading

More himself … in every way

I alternated between shouting and pleading. My son alternated his yelling between loud and louder. I was too frustrated to worry about the scene we were making.  I’m sure we weren’t the first people to have such a showdown. I had taken Deane to see the therapy dogs that are brought into the hospital every … Continue reading

First day of high school

So Deane began high school this morning. He has been pretty excited since we took a tour of the school in the spring. He was happy that he knew one of the kids in the class, liked the pool and the gym where a class was playing basketball. Recently his excitement has been mixed with … Continue reading