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A queasy feeling churned in the pit of my stomach when I realized my child was being moved to the ICU. At 8 a.m. the night nurse told me Deane had had a fever that spiked in the middle of the night. It had been another night of constant de-sats and suctioning. Within an hour, … Continue reading
The hospital at night is not as quiet as you might expect. Unless you’re in a room by yourself because your child is still in constant care with breathing problems. Then it is unsettlingly quiet. Deane is still struggling with secretions blocking his airways. He had a rough night last night and is starting off … Continue reading
So the operation went well yesterday. All the work on Deane’s hip and legs seems to have gone according to plan. The epidural they put in to numb his legs went in smoothly and has remained effective. The schedule was that after a couple of hours in post-op recovery, Deane would be sent up to … Continue reading
Sitting in the family waiting room. Waiting and waiting. My head is swimming slightly with a combination of exhaustion from a 5 a.m. wake up and nervousness of not knowing what it is going on. Our son has been in surgery for four hours. Still two more hours to go. Then comes a long healing … Continue reading
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