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swallowing

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Ask – don’t tell

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We’re celebrating an anniversary.  It’s been exactly two months since Deane’s surgery. Two months that have taken us from operation to ICU to constant care to rehabilitation. We’ve been through oxygen saturation difficulties to a collapsed lung to hydration and swallowing concerns. There have been five NG tubes shoved up his nose, days of unappetizing … Continue reading →

Food vs. nutrition

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“Thanks,” I said and I meant it, but it didn’t sound that way. I was trying to be appreciative of people doing their job with the best of intentions. But the tone of my voice was frustrated, angry, even sarcastic. The problem was I didn’t like what they were saying. In their opinion my son had shown … Continue reading →

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