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Yesterday, a statue was unveiled near the starting line of the Boston Marathon. The statue, titled Yes You Can, is dedicated to Dick and Rick Hoyt who will compete in their 31st Boston Marathon next week. Running the oldest annual marathon every year for three decades is inspirational enough. Competing once again at their respective … Continue reading
“Sweet! Can I sit in it?” It’s not the usual reaction you get to a commode – even a new one. But it’s typical of our daughter’s attitude to the equipment that surrounds our life. She will lock herself in Deane’s stander to have a snack in front of the TV. As soon as … Continue reading
Impossible is Nothing Enough of what I think! This is the link to our daughter’s video about her brother. She made this as the entry into a contest at Holland Bloorview Kids Rehabilitation Hospital to produce a picture or video that changes the way the world views childhood disability. She borrowed a slogan used by … Continue reading
The expression “It takes a village to raise a child” has always conjured up a very specific image in my mind. The picture in my head is of a child in an African village who is looked after not only by parents, but by grandparents, older siblings, extended family members and close friends. He or … Continue reading
I’m celebrating my second New Year’s Eve in the hospital. Dec. 31, 2012, passed with barely a cheer. Tonight, we are anticipating the real beginning of our New Year – going home. While New Year’s is about looking forward, it is also a time for reflecting on what has gone before. Here, on our second … Continue reading
Deane is being discharged on Friday – 80 days after his hip surgery. It has been quite a journey: the oxygen masks, the suction tubes, the abduction wedge, the knee immobilizers, the physio, the NG tubes, the minced food, the pressure sore, the in-house school and the recreation; Christmas, New Year’s and my birthday; the … Continue reading
On the wall of his bedroom, hangs a large collage of pictures. There’s Deane as an infant in his father’s arms, as a six-year-old on a carousel in Paris, meeting the Raptor – the mascot of his favourite basketball team, skiing with the family, tubing with his cousins and him with many friends. I made … Continue reading
We were given a weekend pass to come home. This is chance to see if there is equipment or accommodations we would need to be able to bring Deane home. But for Deane, it’s an opportunity to come home for the first time since December. Excited didn’t begin to express his mood today.
Deane didn’t want to go. Just the mention of it put him in a bad mood. Music therapy. In theory, something a guy who loves music should enjoy. We had tried years ago with limited success. I don’t know if he remembered that experience and I’m also not sure how we got referred to the … Continue reading
We’re celebrating an anniversary. It’s been exactly two months since Deane’s surgery. Two months that have taken us from operation to ICU to constant care to rehabilitation. We’ve been through oxygen saturation difficulties to a collapsed lung to hydration and swallowing concerns. There have been five NG tubes shoved up his nose, days of unappetizing … Continue reading
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