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g tube

This tag is associated with 9 posts

It’s official

I have to admit I was feeling pretty positive. This was one appointment I wasn’t worried about. Yesterday was our follow up visit to the feeding clinic. Five months ago, they were the ones who had put Deane on the track to his g-tube. Although I had been very hesitant, I think Deane adapted first … Continue reading

Admitting when you’re not right

OK, so they were right. The doctors, dietitians, OTs and speech paths who said Deane would be better off with a g-tube were right. The persistent cough that woke him – and us – frequently during the night has mostly disappeared. The amount of suctioning he needs is a fraction of what it was. He … Continue reading

Surgery makes me sick

Deane was in a great mood this morning. I don’t think I’ve ever seen him laugh and smile so much in a hospital. He has certainly never been so happy while waiting for surgery.  He was goofing around with Dad, demanding hugs, refusing to pose for pictures and pretending he was going back to sleep. … Continue reading

Limits of Experience

A friend stopped me on the street. The daughter of her friend had been admitted to the hospital with stroke-like symptoms. When the nurse asked the girl to walk across the examination room the six-year-old couldn’t do it without stumbling. Did I have any advice? Despite all the planned – and unplanned – time I’ve … Continue reading

Hard to swallow

I was calm as they said my son was aspirating food and liquids. I was calm as they recommended a g tube and an immediate NG tube. The experts at the swallow clinic had built an irrefutable case. They had just watched Deane eat solids – fairly runny mashed potatoes – drink liquids and eat … Continue reading

Message received

The dietitian’s accent is strong enough that I don’t catch every word and my voice is so low that he has to ask me to repeat myself. But the message was loud and clear: Deane had lost weight since coming out of the hospital and the dietitian is referring us to the g tube clinic. … Continue reading

A familiar scene

It finally came. The day I’ve been trying to avoid for months. The appointment with the dietitian. At our last appointment, more than a year ago, I had been told that if Deane didn’t gain close to 10 pounds, it would be time to look at a g tube. I’ve written before about our – … Continue reading

The confusing world of charting weight gain

Deane’s weight is so far below the curve on a standard growth chart that it is unmeasurable. No wonder the dietitian is giving me ultimatums. It is very distressing when the doctor points to a spot inches below the sweeping curve of normal weight for 14 year olds. But what I’ve found out on our … Continue reading

The weight crisis in my house

The dietitian is on my case. He’s unhappy about how much my son weighs. In a country where childhood obesity is at epidemic levels, Deane is underweight. He is 14 but will soon be surpassed by his nine-year-old sister in both height and weight. Some of this might be genetic – I’m not exactly a giant … Continue reading