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I alternated between shouting and pleading. My son alternated his yelling between loud and louder. I was too frustrated to worry about the scene we were making. I’m sure we weren’t the first people to have such a showdown. I had taken Deane to see the therapy dogs that are brought into the hospital every … Continue reading
“Are you sure you want to do this?” I asked a number of times. After describing the routine of looking after my son overnight, I gave her one last opportunity to back out. But our former babysitter and incredibly generous friend didn’t accept my offer. She just smiled. She had volunteered to stay with Deane … Continue reading
My son got transferred to a rehabilitation hospital today – two weeks less a day after his hip surgery. I wrote in my last post that this would be a great Christmas present. After another rough night, the nurse came in at 6:30 and said she was going ot take out Deane’s IV because the … Continue reading
It was quiet day after a frustratingly restless night. Some wonderful pre-Christmas visits from friends and family helped pass the time in an increasingly empty wing of the hospital. The word from the staff here is that we are a go to transfer tomorrow, but there seems to be some confusion about whether the transfer … Continue reading
Today was a day about building on gains. The medical establishment isn’t happy with a spark here and peek there of the person before surgery. It wants you on solidly on the road back to your regular self with your regular routine. So today was about eating and drinking more. There really wasn’t much else on … Continue reading
So I finally asked the doctor what it would take for us to get out of the hospital. Only today did I feel we were close enough to the end to ask what hurdles remained. In general, medical staff – the doctors, nurses, specialists – talk about the immediate, which test needs to be done … Continue reading
On the way home from the hospital, I fell asleep on the subway. Almost missed my stop. I guess adrenaline will only take you far. Deane is not running on adrenaline. He is, as they say in sports journalism, gutting it out, digging deep and – do I dare say – giving 110%. Today … Continue reading
The hospital at night is not as quiet as you might expect. Unless you’re in a room by yourself because your child is still in constant care with breathing problems. Then it is unsettlingly quiet. Deane is still struggling with secretions blocking his airways. He had a rough night last night and is starting off … Continue reading
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