Just before she headed out for the weekend, the speech-language pathologist assigned to our son’s case, came by to tell us that on Monday she would be lifting the order that he be given only minced food. She was at pains, however, to emphasize that his food must be cut up into very small pieces … Continue reading
We need a win. That was the thought I came out of the meeting with all the staff involved in our son’s care. They went around the table and talked about the issues: his eating – or lack thereof; his hydration – through an NG tube they’re in no hurry to remove; his weight bearing … Continue reading
We had a number of victories today. Deane had the best night’s sleep he has had in more than three weeks. Don’t know if it was yesterday’s first real physio workout or adding melatonin to his drug regimen, but it worked. If we can repeat it tonight, it will officially be a streak. In yesterday’s … Continue reading