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NG tube

This tag is associated with 9 posts

It’s official

I have to admit I was feeling pretty positive. This was one appointment I wasn’t worried about. Yesterday was our follow up visit to the feeding clinic. Five months ago, they were the ones who had put Deane on the track to his g-tube. Although I had been very hesitant, I think Deane adapted first … Continue reading

Tubing the right way

This is more like summer!

Gone tubing

Seven days. Three hospitals. Four NG tubes.. Nine insertion attempts. Two tubes thrown up. Three different tube styles. Four different tape jobs. Seventeen and a half hours in waiting rooms. One patient, stoic kid. And this morning, day 10, he threw up the tube again. This wasn’t what we had in mind when we said … Continue reading

A – very – little shut eye

Sleep is an invaluable commodity. Every parent knows the value of a good night’s sleep and the cost of a miserably disrupted night. For most parents, the majority of sleepless nights are during their children’s early years. Kids generally grow into a routine of sleeping that allows parents to get at least enough sleep to … Continue reading

Hard to swallow

I was calm as they said my son was aspirating food and liquids. I was calm as they recommended a g tube and an immediate NG tube. The experts at the swallow clinic had built an irrefutable case. They had just watched Deane eat solids – fairly runny mashed potatoes – drink liquids and eat … Continue reading

Five days and counting…

Deane is being discharged on Friday – 80 days after his hip surgery. It has been quite a journey:  the oxygen masks, the suction tubes, the abduction wedge, the knee immobilizers, the physio, the NG tubes, the minced food, the pressure sore, the in-house school and the recreation; Christmas, New Year’s and my birthday; the … Continue reading

Looking for a win

We need a win. That was the thought I came out of the meeting with all the staff involved in our son’s care. They went around the table and talked about the issues: his eating – or lack thereof; his hydration – through an NG tube they’re in no hurry to remove; his weight bearing … Continue reading

It’s all about winning the war

We had a number of victories today. Deane had the best night’s sleep he has had in more than three weeks. Don’t know if it was yesterday’s first real physio workout or adding melatonin to his drug regimen, but it worked. If we can repeat it tonight, it will officially be a streak. In yesterday’s … Continue reading

The stockings are …

My son got transferred to a rehabilitation hospital today – two weeks less a day after his hip surgery. I wrote in my last post that this would be a great Christmas present. After another rough night, the nurse came in at 6:30 and said she was going ot take out Deane’s IV because the … Continue reading