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My son got transferred to a rehabilitation hospital today – two weeks less a day after his hip surgery. I wrote in my last post that this would be a great Christmas present. After another rough night, the nurse came in at 6:30 and said she was going ot take out Deane’s IV because the … Continue reading
I am not prone to happy dances. But then again, it’s been a rather unusual 10 days. What had me grooving by myself in my son’s hospital room was the sight of Deane slowly, stiffly raising his cup to his mouth and sucking back some milk. After a rough night in which Deane had been … Continue reading
So I finally asked the doctor what it would take for us to get out of the hospital. Only today did I feel we were close enough to the end to ask what hurdles remained. In general, medical staff – the doctors, nurses, specialists – talk about the immediate, which test needs to be done … Continue reading
“Have you considered getting a hospital bed for after the operation?” asked the occupational therapist. “You should have a suction machine. I’ll go get the papers to order it,” said the respiralogist 20 minutes later. We were at an annual follow-up visit for Deane, led by a pediatrician specializing in neuromusclular disorders. They use a team approach … Continue reading
I sat in a corner of my son’s classroom with a knot growing in my stomach. I’ve been through this before. I was there with the speech-language pathologist, an OT who specializes in communication systems and two of Deane’s educational assistants. The purpose of the meeting was to show the EAs how to connect Deane’s … Continue reading
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