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It was quiet day after a frustratingly restless night. Some wonderful pre-Christmas visits from friends and family helped pass the time in an increasingly empty wing of the hospital. The word from the staff here is that we are a go to transfer tomorrow, but there seems to be some confusion about whether the transfer … Continue reading
A queasy feeling churned in the pit of my stomach when I realized my child was being moved to the ICU. At 8 a.m. the night nurse told me Deane had had a fever that spiked in the middle of the night. It had been another night of constant de-sats and suctioning. Within an hour, … Continue reading
The hospital at night is not as quiet as you might expect. Unless you’re in a room by yourself because your child is still in constant care with breathing problems. Then it is unsettlingly quiet. Deane is still struggling with secretions blocking his airways. He had a rough night last night and is starting off … Continue reading
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