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It seemed like a good idea at the time; We’d all go to family camp to get Deane familiar so that he might be able to go on his own next summer. Good theory. But not all theories work out in practice. Deane had been to camp with Dad a couple of years ago and … Continue reading
So I legitimately had a doctor’s appointment when the school called to say my son was “exhibiting a high temperature.” But I didn’t have to get off a station early and make three stops on my way home to get the car. Or take the time to delete 97 emails from my phone and make … Continue reading
Deane didn’t want to go. Just the mention of it put him in a bad mood. Music therapy. In theory, something a guy who loves music should enjoy. We had tried years ago with limited success. I don’t know if he remembered that experience and I’m also not sure how we got referred to the … Continue reading
I alternated between shouting and pleading. My son alternated his yelling between loud and louder. I was too frustrated to worry about the scene we were making. I’m sure we weren’t the first people to have such a showdown. I had taken Deane to see the therapy dogs that are brought into the hospital every … Continue reading
Happy New Year! Our family celebrated New Year’s Eve in our son’s room in the orthopaedic unit of the rehabilitation hospital that will be his home for the next couple of months. He fell asleep about 11:30. Our daughter watched a live streaming of the count down with us. Unlike other years, there was no … Continue reading
It was a long day. Deane found it long. I found it long. It wasn’t because it was traumatic. It wasn’t even hard. In fact, Deane made it look easy. At morning rounds, the nurse reported that Deane had been off his oxygen mask for a total of 6.5 hours yesterday. The doctor suggested we … Continue reading
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