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This tag is associated with 5 posts

Wanted: personal camp counselor

I don’t know where the last two months have gone. It seemed winter would never end and now we are hurdling toward summer. The school year has been a blur of over scheduled days and weekends that are barely a blip in the frantic pace. My kids, of course, are counting down the days to … Continue reading

One time at family camp …

It seemed like a good idea at the time; We’d all go to family camp to get Deane familiar so that he might be able to go on his own next summer. Good theory. But not all theories work out in practice. Deane had been to camp with Dad a couple of years ago and … Continue reading

Welcome to the system

I have written that my fear about my son getting a g tube was that it would medicalize him (The weight crisis in my house). I didn’t want our world to be filled with IV poles, drip bags and plastic tubing. With his current, NG tube it also involves an omnipresent stethoscope and syringe to … Continue reading

With a lot of help …

The last week was hard: Figuring out Deane non-stop ingesting schedule; Having Deane home because high schools finish a week early; Having our intake meeting with the government agency that has funded the personal support worker who has been feeding Deane dinner since March; Getting those services transferred up to our cottage and endless struggles … Continue reading

How was your summer?

I’ve been asked this innocent question many times in the last couple of days. My standard answer has been that it was good. Why wouldn’t it have been good? I was lucky enough to spend most of it at the cottage with the kids, getting lots of time with my extended family, eating way too … Continue reading