Uncategorized

With a lot of help …

The last week was hard: Figuring out Deane non-stop ingesting schedule; Having Deane home because high schools finish a week early; Having our intake meeting with the government agency that has funded the personal support worker who has been feeding Deane dinner since March; Getting those services transferred up to our cottage and endless struggles with the pharmacy over prescriptions and payments. All the while, trying to pack for two months at the cottage.

After a week like that, it was particularly touching to have two of Deane’s uncles, professional  riggers, come up and spend 10 hours climbing trees, running wires, attaching pulleys, securing ropes, building a chair, testing and retesting a modified zip line. The triumph at the end: Deane’s smile when he got on it and flew through the air.

Support like that makes even the worst weeks fade away.

Advertisements

Discussion

No comments yet.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: