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Just before she headed out for the weekend, the speech-language pathologist assigned to our son’s case, came by to tell us that on Monday she would be lifting the order that he be given only minced food. She was at pains, however, to emphasize that his food must be cut up into very small pieces … Continue reading
We need a win. That was the thought I came out of the meeting with all the staff involved in our son’s care. They went around the table and talked about the issues: his eating – or lack thereof; his hydration – through an NG tube they’re in no hurry to remove; his weight bearing … Continue reading
“Are you sure you want to do this?” I asked a number of times. After describing the routine of looking after my son overnight, I gave her one last opportunity to back out. But our former babysitter and incredibly generous friend didn’t accept my offer. She just smiled. She had volunteered to stay with Deane … Continue reading
We had a number of victories today. Deane had the best night’s sleep he has had in more than three weeks. Don’t know if it was yesterday’s first real physio workout or adding melatonin to his drug regimen, but it worked. If we can repeat it tonight, it will officially be a streak. In yesterday’s … Continue reading
Happy New Year! Our family celebrated New Year’s Eve in our son’s room in the orthopaedic unit of the rehabilitation hospital that will be his home for the next couple of months. He fell asleep about 11:30. Our daughter watched a live streaming of the count down with us. Unlike other years, there was no … Continue reading
“Thanks,” I said and I meant it, but it didn’t sound that way. I was trying to be appreciative of people doing their job with the best of intentions. But the tone of my voice was frustrated, angry, even sarcastic. The problem was I didn’t like what they were saying. In their opinion my son had shown … Continue reading
When my children were infants, there was no more important issue than sleep. Any conversation among parents of newborns eventually circled around to sleep – the baby’s constantly changing habits and the parents’ lack of it. The debates among proponents of different approaches – co-sleeping, letting babies cry it out or no method at all … Continue reading
My son got transferred to a rehabilitation hospital today – two weeks less a day after his hip surgery. I wrote in my last post that this would be a great Christmas present. After another rough night, the nurse came in at 6:30 and said she was going ot take out Deane’s IV because the … Continue reading
Today was a day about building on gains. The medical establishment isn’t happy with a spark here and peek there of the person before surgery. It wants you on solidly on the road back to your regular self with your regular routine. So today was about eating and drinking more. There really wasn’t much else on … Continue reading
I am not prone to happy dances. But then again, it’s been a rather unusual 10 days. What had me grooving by myself in my son’s hospital room was the sight of Deane slowly, stiffly raising his cup to his mouth and sucking back some milk. After a rough night in which Deane had been … Continue reading
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