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So I finally asked the doctor what it would take for us to get out of the hospital. Only today did I feel we were close enough to the end to ask what hurdles remained. In general, medical staff – the doctors, nurses, specialists – talk about the immediate, which test needs to be done … Continue reading
“Now the hard work begins.” I couldn’t believe I was saying this to my son who had just spent the last week struggling to breathe with a collapsed lung. He has had tubes stuck down his throat and up his nose to suction the secretions out of his lungs at all times of the day … Continue reading
Deane transferred out of the ICU today. He went more than 24 hours without any assistance breathing so as far as intensive care was concerned, their job was done. At about 1:30, Deane rode his bed through the back halls of the hospital up to the orthopaedic floor. This is the goal for which Deane … Continue reading
It was a long day. Deane found it long. I found it long. It wasn’t because it was traumatic. It wasn’t even hard. In fact, Deane made it look easy. At morning rounds, the nurse reported that Deane had been off his oxygen mask for a total of 6.5 hours yesterday. The doctor suggested we … Continue reading
On the way home from the hospital, I fell asleep on the subway. Almost missed my stop. I guess adrenaline will only take you far. Deane is not running on adrenaline. He is, as they say in sports journalism, gutting it out, digging deep and – do I dare say – giving 110%. Today … Continue reading
My husband and I sat by Deane’s bed yesterday afternoon and read the many, many amazing messages that we have received conveying warm thoughts and prayers for Deane. We can’t begin to express how much this means to us. Knowing that there are so many people, some of whom are friends of friends we have … Continue reading
It’s not wise to go looking for drama when you’re in the hospital. All too often it will find you and it’s not good. But when there aren’t any big developments, it’s hard to know how things are going. That’s how Deane’s fifth day in the hospital has been. It’s not that nothing happened. Late … Continue reading
A queasy feeling churned in the pit of my stomach when I realized my child was being moved to the ICU. At 8 a.m. the night nurse told me Deane had had a fever that spiked in the middle of the night. It had been another night of constant de-sats and suctioning. Within an hour, … Continue reading
The hospital at night is not as quiet as you might expect. Unless you’re in a room by yourself because your child is still in constant care with breathing problems. Then it is unsettlingly quiet. Deane is still struggling with secretions blocking his airways. He had a rough night last night and is starting off … Continue reading
So the operation went well yesterday. All the work on Deane’s hip and legs seems to have gone according to plan. The epidural they put in to numb his legs went in smoothly and has remained effective. The schedule was that after a couple of hours in post-op recovery, Deane would be sent up to … Continue reading
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