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OK, so they were right. The doctors, dietitians, OTs and speech paths who said Deane would be better off with a g-tube were right. The persistent cough that woke him – and us – frequently during the night has mostly disappeared. The amount of suctioning he needs is a fraction of what it was. He … Continue reading
I have written that my fear about my son getting a g tube was that it would medicalize him (The weight crisis in my house). I didn’t want our world to be filled with IV poles, drip bags and plastic tubing. With his current, NG tube it also involves an omnipresent stethoscope and syringe to … Continue reading
I’m celebrating my second New Year’s Eve in the hospital. Dec. 31, 2012, passed with barely a cheer. Tonight, we are anticipating the real beginning of our New Year – going home. While New Year’s is about looking forward, it is also a time for reflecting on what has gone before. Here, on our second … Continue reading
We have an open door policy. It’s partly because we still spend a lot of time in our room and a closed door just makes our existence that much smaller. It’s also because welcoming people to your home at any time is how I was brought up. The down side of that in our current … Continue reading
My son got transferred to a rehabilitation hospital today – two weeks less a day after his hip surgery. I wrote in my last post that this would be a great Christmas present. After another rough night, the nurse came in at 6:30 and said she was going ot take out Deane’s IV because the … Continue reading
I am not prone to happy dances. But then again, it’s been a rather unusual 10 days. What had me grooving by myself in my son’s hospital room was the sight of Deane slowly, stiffly raising his cup to his mouth and sucking back some milk. After a rough night in which Deane had been … Continue reading
So I finally asked the doctor what it would take for us to get out of the hospital. Only today did I feel we were close enough to the end to ask what hurdles remained. In general, medical staff – the doctors, nurses, specialists – talk about the immediate, which test needs to be done … Continue reading
“Now the hard work begins.” I couldn’t believe I was saying this to my son who had just spent the last week struggling to breathe with a collapsed lung. He has had tubes stuck down his throat and up his nose to suction the secretions out of his lungs at all times of the day … Continue reading
On the way home from the hospital, I fell asleep on the subway. Almost missed my stop. I guess adrenaline will only take you far. Deane is not running on adrenaline. He is, as they say in sports journalism, gutting it out, digging deep and – do I dare say – giving 110%. Today … Continue reading
So the operation went well yesterday. All the work on Deane’s hip and legs seems to have gone according to plan. The epidural they put in to numb his legs went in smoothly and has remained effective. The schedule was that after a couple of hours in post-op recovery, Deane would be sent up to … Continue reading
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